Sunday, July 1, 2007

the story i have been trying to avoid

I've been hearing a lot about how Chris Benoit and his family died and about at least one other woman who committed suicide with her son who had Fragile X. I thought this was a really good response from The National Fragile X Foundation. It's hard for me to relate to that kind of devastation. I deal with depression and anxiety, too, but I have never felt like these two people must have felt. I guess it could be because my son is young and we haven't reached a lot of the same challenges yet. But I think it has a lot more to do with my family, friends, and faith. I do wish that counseling for all family members was part of the waiver program. We all need someone to talk to, need ways to ease the stress and the worry. Anyway, the FX Foundation is also sponsoring a webcast on July 20. They are usually pretty interesting, and they allow you to e-mail questions and comments before or during the event.

PRESS RELEASE June 28, 2007

The National Fragile X Foundation shares in the sorrow surrounding the death of wrestler Chris Benoit and his wife and son. Early reports indicate that the son had fragile X syndrome, the world’s leading cause of inherited intellectual disability, and that Mr. Benoit may have been depressed over that fact. While the parents and professionals who make up the National Fragile X Foundation fully understand and appreciate the difficulties associated with raising a child with fragile X syndrome, we urge all citizens to learn more about the condition and about how, with the proper diagnosis and intervention, those boys and girls, men and women, can be active participants and contributing members of their families, schools and communities.


The U.S. Congress has designated July 22 as "National Fragile X Awareness Day." The National Fragile X Foundation uses this opportunity to help spread awareness about the condition as well as to educate professionals about the best forms of treatment and intervention. This year, on July 20, the National Fragile X Foundation has organized a three-hour, international audio/video webcast featuring many of the nation’s leading fragile X syndrome clinicians. This free event is an excellent opportunity to learn about what can be done to provide the maximum opportunities for children affected by the syndrome.


Throughout the world, scientists, doctors, teachers, therapists and counselors are working hard to provide better forms of treatment and intervention. The National Fragile X Foundation has been organizing those professionals and disseminating information to the worldwide Fragile X community since 1984. Unfortunately, it sometimes takes a tragedy, such as that involving Chris Benoit and his family, to bring attention to so-called "rare" conditions.


To learn more about fragile X syndrome, as well as the upcoming webcast, please visit http://www.fragilex.org/
The National Fragile X Foundation

4 comments:

Anonymous said...

I agree. I sent the news release to ABC. Hopefully they will pick up on the story.

Punkin's Oma

Kristiem10 said...

I have the depression and anxiety issues, too. But, my faith in God, and a supportive family has kept me from feeling hopeless, as the Benoit family may have felt. Jer. 29:11 is a special verse to me. I plan on listening to the webcast on the 20th.

Jennie said...

When I saw that the WWE was blaming this child's death on him, I FREAKED! The honey and I expressed much vituperation at the idea that ONLY this child's disease - not drugs, not lifestyle, not personality disorders - was the cause of three deaths. Bah!

Anonymous said...

You might be interested in this video:
http://www.youtube.com/watch?v=fQ_wKmupoGw