Tuesday, August 30, 2011

laughter heals me

Ask any parent of a child with a disability and she will tell you she is tired. Tired of poop on the floor, tired of IEPs, tired of waking up at 3am, tired of restraining their babies to keep them from harm, tired of anxiety, tired of worrying about the future, tired of arguing about food, tired of comparing them to their peers, tired of advocating, tired of meltdowns, tired of medications, just tired.

And then this happens:Mom has a ponytail. Eeyore has a tail. Punkin needs a "tonytail."

Sunday, August 21, 2011

silly babies

What? Of COURSE this is for me. It's adorable just like me and so suited to my sensory needs. You're such a bummer, always telling me I'm going to regret things. Let me LIVE.

Maybe I'll try it again in two minutes; it might work better in two minutes.

Friday, August 19, 2011

and, he's fine

Man, is he excited to see that bus in the morning. I cried the first day, but it was mostly a happy cry. The first week went well. *sigh*

Sunday, August 14, 2011

kids, they're all the same in the end

I have to admit that every time I thought about this summer last year, I panicked inside. And maybe a little on the outside, too. (Sorry, Oma, for all the grumpies.) Where would he go? What if it was awful? I want him to make friends, have structure, be happy. WHAT WILL I DO???!!!

Well, I have to give my mom props for advocating to me and to the summer program at her school to allow Punkin to attend. All day? Check! Fun? Check! Affordable? Check! For children with special needs? Not so much a check. But, we all agreed to give it a try, and even though he pulled the fire alarm his first day (and during his second to last week) and succumbed to a few meltdowns, I just couldn't have imagined how much my little man would flourish over a few months.

My sweet Punkin has become Little Mr. Independent. When Oma showed up to help with a field trip, he actually told her "No, stay here" and walked over to stand with his friends. His friends! Those sweet boys - if they only knew how much they influenced a life simply through kindness.

And now? Now it all has to end, of course. The school district, in its wisdom, has transferred me to another building. So tomorrow morning, my Little Independent boards the bus for school. He's repeating kindergarten, which I think will be good for him. He'll be able to integrate more this year and really catch that social piece that was missing last year. But we're both nervous- so much so that the first three times I mentioned school, he smacked me. And at Unpack Your Backpack, he bit me.

"I know it is scary to be back at school."

"Scawey. I scawey."

"It will be okay."

"Okay, mom. I sowwy,, Mom."

So the panic began again, "Will he lose everything he's gained?"

And then I calmed down; it will be okay. We talked about it. A lot. And today when I asked him if he was ready to ride the bus, he answered with a resounding, "Yes!"

"Ready for bus to take you to school?"


"Well, where should the bus take you?"


Wednesday, August 10, 2011

turn down the volume


No, really. He's learned how to play the recorder.

Sunday, August 7, 2011

the difference a year makes

It's my birthday tomorrow. I'm turning 29, which feels slightly unreal. Most days it seems as though I just left college, even though life has changed dramatically since those days. Well, not too dramatically, I suppose. Oma and Opa bought our groceries on Thursday and Punkin's new backpack today. :)

My sister visited Thursday as well, and much to Punkin's delight we went swimming immediately after summer school. She noted that if all you needed to do for swimming lessons was learn how to jump in the pool, he would pass with flying colors. I informed her that in fact he DID pass swimming lessons, as a Pollywog, for that very reason. His occupational therapist is thrilled with his new skill; she said jumping in the pool ten times should give him enough deep pressure to last the afternoon, and I have to agree that he is calmer on days we swim.

I think this year I'm more focused on Punkin's maturity and overall development than my turning a year older. When we were at the pool today, for example, two boys his age came and he went up to the younger one and said, "Swim mi me?" Once I translated that he wanted to play with him, the two played just like any two little boys would. Punkin was fairly bossy, but he also said thank you and offered to hold the boy's hand. And the other child didn't seem to mind. They just climbed in and out of the pool, throwing plastic fish in the water and jumping in to catch them. They continued for 10 minutes until I said it was time to leave.

That was a pretty sweet birthday present, as were the four bottles of Naked Juice in my fridge on Friday when my sister left. Yum.