Well, a few weeks later we had his appointment at the Fragile X Clinic and he showed the doctor all of his less favorable traits. So we are making a huge change. A really scary change.
WE ARE STOPPING THE RITALIN.
You read that correctly. I done lost my mind. I'm sure that's what my son's teachers thought when they opened up their email:
Punkin's developmental pediatrician and I had a long talk today. Despite how well he is doing at school, he is really struggling at home. Because he is doing well at school and not at home, she doesn't think an increase in Ritalin would be appropriate or necessary. In fact, I agree with her that I am unsure it is helping much at all at this point because he metabolizes it so quickly. We are both thinking that the Abilify is helping a lot and are excited about his progress this year because of your hard work along with the meds.
We want to try increasing the Abilify to 7.5mg (this makes me a bit nervous as a mommy) and stop the Ritalin all together. She also wants to add minocycline, which is an antibiotic that has been in studies for years now and is believed to work on the brain's synapses and protein production. If it is successful we should see better attention, better eye contact, and improved speech. We need to watch for a rash, loose stools, and joint pain. She also prescribed a probiotic to help with the loose stools. And she told me to make sure I apply sunscreen every morning.
My other concern is that the Abilify will make him hungry and he will have meltdowns because he wants to eat all the time. That said, I still think all of this is worth trying. I know several children who are on this antibiotic and it is really helping them.
I really, really need you to be honest with me about his behavior during this transition. I am also going to be looking into getting a body sock for home. He is seriously a hot mess of sensory disregulation in the afternoon.
So, unless I forget and do it out of habit, he won't have his Ritalin tomorrow and shouldn't have it anymore.
So how did today go? As I told a friend a few minutes ago, it was not awful but it was not awesome. His teacher said that he needed to be redirected more often and he had a few more off task behaviors such as taking off his shoes and crying. At home he was happy but bouncing off the walls. So there you have it. Day one down.